Academic Journal of Psychology and Education (AJPE)

JOURNEYS OF SURVIVAL: KIDNEY TRANSPLANT STORIES FROM THE PHILIPPINES

Authors

  • Ramon Gabriel Fernandez Department of Psychology, College of Education, Arts, and Sciences, National University, Manila, Philippines.

Abstract

Organ donation and transplantation remain the best and most costeffective clinical approach for people in the terminal stage of organ failure. Given the growing numbers of incidences of patients treated for end-stage renal disease (ESRD) and the plummeting rate of kidney transplantation in the US and Southeast Asia, little is known about the understanding of the life stories of kidney organ transplant recipients, specifically in the Philippines. The present study aimed to provide a narrative study of the life stories of individuals who received kidney transplantation through either a live or deceased organ donor. By employing Dewey’s theory of experience, the shared stories of the transplant recipients yielded the following themes: carefree life, struggles before transplant, and psychological effects of the past; support system, journey to liminality, and positive outlook in life for the present stories; giving back, fatalistic view of life and sense of normalcy for the future aspirations or stories of the respondents. Kidney transplantation goes beyond the surgical process; it encompasses lifelong social and psychological transition and transformation for kidney transplant recipients.

Keywords:

Kidney transplant, organ donation, transplant

Published

2024-08-02

DOI:

https://doi.org/10.5281/zenodo.13144344

Issue

Section

Articles

How to Cite

Fernandez, R. G. (2024). JOURNEYS OF SURVIVAL: KIDNEY TRANSPLANT STORIES FROM THE PHILIPPINES. Academic Journal of Psychology and Education (AJPE), 15(7), 13–30. https://doi.org/10.5281/zenodo.13144344

References

Boaz A, Morgan M (2014). Working to establish ‘normality’posttransplant: a qualitative study of kidney

transplant patients. Chronic Illness 10(4):247-258.

Chan-On C (2017). A Comprehensive Analysis of the Current Status and Unmet Needs in Kidney Transplantation

in Southeast Asia. Frontiers.

https://www.frontiersin.org/articles/10.3389/fmed.2017.000 84/full

Cleland JA (2017). The qualitative orientation in medical education research. Korean Journal of Medical

Education 29(2):61.

Cowie S, Choy SH, Shah DM, Gomez MP, Yoong BK, Koong JK (2023). Healthcare system impact on deceased

organ donation and transplantation: A comparison between the top 10 organ donor countries with 4

countries in Southeast Asia. Transplant

International 36:11233.

Credle L (2020). Gratitude, Resilience and Post-Traumatic Growth among Kidney Transplant Recipients.

Creswell JW, Miller DL (2000). Determining validity in qualitative inquiry. Theory into Practice 39(3):124-131.

De Pasquale C, Veroux M, Pistorio ML, Papotto A, Basile G, Patanè M, Veroux P, Giaquinta A, Sciacca F (2019).

Return to work and quality of life: a psychosocial survey after kidney transplant. In Transplantation

Proceedings 51(1):153-156. Elsevier.

Deshmukh CD, Baheti A (2020). Need, process and importance of organ transplantation. Asian Journal of

Pharmacy and Pharmacology 6(2):126-131.

Espina ZE (2024). Philippines leads asia in ‘living organ’ donation --- nkti.

Manila Bulletin. https://mb.com.ph/2024/2/19/philippines-leads-asiainliving-organ-donation

nkti?fbclid=IwAR2KNJIZhh6lvImpnNkQ2nt8OLeOd6p7_ rOJGt8V5pzeBhPhA_VI1HG-ywE.

George C, Mogueo A, Okpechi I, Echouffo-Tcheugui JB, Kengne AP (2017). Chronic kidney disease in lowincome to middle-income countries: the case for increased screening. BMJ Global Health 2(2):e000256.

Gordon EJ, Prohaska TR, Sehgal AR. (2008). The financial impact of immunosuppressant expenses on new

kidney transplant recipients. Clinical Transplantation 22(6):738-748.

Griva K, Seow PS, Seow TY, Goh ZS, Choo JC, Foo M, Newman S

(2020). Patient-Related Barriers to Timely Dialysis Access Preparation: A qualitative study of the perspectives

of patients, family members, and health care providers. Kidney Medicine 2(1):29-41.

Hao W, Tang Q, Huang X, Ao L, Wang J, Xie D (2021). Analysis of the prevalence and influencing factors of

depression and anxiety among maintenance dialysis patients during the COVID-19 pandemic.

International Urology and Nephrology 53(7):1453-1461.

Hu N, Wang A, Chang T (2023). Social support mediates the relationship between illness perception and

psychosocial adaptation among young and middle-aged kidney transplant recipients in China.

Frontiers in Psychology 14:1062337.

Hu S, Li Y, Quan M, Yang S, Wan Z, Yan X, Tan Z, Liang G (2021). A study on the correlations of anxiety and

depression with SelfManagement Ability and endogenous creatinine clearance rate in renal transplant

recipients. Frontiers in Psychiatry 12:715509.

Ibite SD, Kolekar R (2024). Optimism and Psychological Well-being Among Young Adults » The International

Journal of Indian Psychȯlogy 12(1):2167-2171. https://doi.org/10.25215/1201.195

Jankowski J, Floege J, Fliser D, Böhm M, Marx N (2021). Cardiovascular disease in chronic kidney disease:

pathophysiological insights and therapeutic options. Circulation 143(11):1157-172.

Kenawy AS, Gheith O, Al-Otaibi T, Othman N, Abo Atya H, Al-Otaibi M, Nagy MS (2019). Medication

compliance and lifestyle adherence in renal transplant recipients in Kuwait. Patient Preference and

Adherence 30:1477-1486.

Kim JH (2015). Understanding narrative inquiry: The crafting and analysis of stories as research. Sage

publications. Kovesdy CP (2022). Epidemiology of chronic kidney disease: an update 2022. Kidney

International Supplements 12(1):7-11.

Kristensen IV, Birkelund R, Henriksen J, Agerskov H, Norlyk A (2020). Living in one’s own world, while life

goes on: Patients’ experiences prior to a kidney transplantation with a living donor. Journal of Clinical

Nursing 29(3-4):638-644.

Lv JC, Zhang LX (2019). Prevalence and Disease Burden of Chronic Kidney Disease. Advances in

Experimental Medicine and Biology pp. 3-15.

Leblond M, Achille M, Clermont MJ, Blydt‐Hansen T (2019). Becoming unique: A qualitative study of identity

development of adolescent kidney recipients. Pediatric Transplantation 24(1):e13607.

Mayo Clinic (2023). Chronic kidney disease - Symptoms and causes - Mayo Clinic.

https://www.mayoclinic.org/diseases-conditions/chronickidney-disease/symptoms-causes/syc-20354521

Ng MSN, Chan DN, Cheng Q, Miaskowski C, So WK (2021). Association between Financial Hardship and

Symptom Burden in Patients Receiving Maintenance Dialysis: A Systematic Review. InternationalJournal

of Environmental Research and Public Health 18(18):9541.

Omidi A (2018). The Correlation of Quality of Life with Social Support for Kidney Transplant Patients. Scientific

Journal of Hamadan Nursing and Midwifery Faculty 26(5):341-348.

Orr A, Willis S, Holmes M, Britton P, Orr D (2007). Living with a kidney transplant: a qualitative investigation

of quality of life. Journal of Health Psychology 12(4):653-662.

Ralph AF, Butow P, Craig JC, Wong G, Chadban SJ, Luxton G, Gutman T, Hanson CS, Ju A, Tong A (2019).

Living kidney donor and recipient perspectives on their relationship: longitudinal semistructured

interviews. BMJ Open 9(4):e026629.

Ranahan M, Dolph B, VonVisger J, Cadzow R, Feeley TW, Kayler LK (2021). A Narrative Review of Qualitative

Studies Describing Access to Kidney Transplantation. Progress in Transplantation 31(2):174183.

Shahgholian N, Yousefi H (2018). The lived experiences of patients undergoing hemodialysis with the concept of

care: a phenomenological study. BMC Nephrology 19(1

Takahashi A, Hu SL, Bostom AG (2018). Physical Activity in Kidney Transplant Recipients: A Review. American

Journal of Kidney Diseases 72(3):433-443

Tsutsui H, Nomura K., Ishiguro A, Tsuruta Y, Kato S, Yasuda Y, Uchida S, Oshida Y (2017). Factors associated

with employment in patients undergoing hemodialysis: a mixed methods study. Renal Replacement

Therapy 3(1).

Tucker EL, Smith AR, Daskin MS, Schapiro H, Cottrell SM, Gendron ES, HillCallahan P, Leichtman AB, Merion

RM, Gill SJ, Maass KL (2019). Life and expectations post-kidney transplant: a qualitative analysis of

patient responses. BMC Nephrology 20:1-10.

Webster AC, Nagler EV, Morton RL, Masson P (2017). Chronic Kidney Disease. The Lancet 389(10075):1238-

Zhang Z, Jin J, Luo C, Chen A (2022). Excavating the social representations and perceived barriers of organ

donation in China over the past decade: A hybrid text analysis approach. Frontiers in Public Health

:998737